Heart Stories

This is Lily. She is 8 years old. She had HLHS and a pacemaker. She is a patient of the Cardiac Center at Children's Hospital of Philadelphia, and has completed the 3-staged surgical reconfiguration (Norwood, bi-directional Glen, Fontan). She is in the 2nd grade and enjoys dance, softball, piano, Girl Scouts, and art. She is also the most amazing daughter and big sister we could ever ask for!

This is Lily. She is 8 years old. She had HLHS and a pacemaker. She is a patient of the Cardiac Center at Children’s Hospital of Philadelphia, and has completed the 3-staged surgical reconfiguration (Norwood, bi-directional Glen, Fontan). She is in the 2nd grade and enjoys dance, softball, piano, Girl Scouts, and art. She is also the most amazing daughter and big sister we could ever ask for!

Bella is 1 year old and loves kisses and playing with her cousins. Bella was diagnosed with HLHS at our 20 week ultrasound. She was born in the SDU at CHOP and had her first open heart surgery (Norwood) at 7 days old and her second (Hemi-Fontan) at 4 months old. We are so thankful to all the doctors and nurses at CHOP who have taken care of our daughter.

Bella is 1 year old and loves kisses and playing with her cousins. Bella was diagnosed with HLHS at our 20 week ultrasound. She was born in the SDU at CHOP and had her first open heart surgery (Norwood) at 7 days old and her second (Hemi-Fontan) at 4 months old. We are so thankful to all the doctors and nurses at CHOP who have taken care of our daughter.

This is Xavier! He is 2 1/2 and has HLHS, a repaired tricuspid valve and a pacemaker. He was born in the special delivery unit at The Children's Hospital of Philadelphia. He has had his Norwood, Bi Directional Glen, and this past summer had his valve repair surgery and his pacemaker placed. He will complete his repair (fontan) in September. He loves to play with cars, play with trains, paint and read books. He is a sweet boy and a fantastic big brother!!!

This is Xavier! He is 2 1/2 and has HLHS, a repaired tricuspid valve and a pacemaker. He was born in the special delivery unit at The Children’s Hospital of Philadelphia. He has had his Norwood, Bi Directional Glen, and this past summer had his valve repair surgery and his pacemaker placed. He will complete his repair (fontan) in September. He loves to play with cars, play with trains, paint and read books. He is a sweet boy and a fantastic big brother!!!

 

 

 

 

 

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